STATUS:

Full-time, Exempt

LOCATION

Fully Remote

DIRECT SUPERVISOR

Vice President, Community Engagement

ABOUT THE FOUNDATION

The National Scleroderma Foundation is a 501(c)(3) charitable organization founded to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. Supported by a network of thousands of individuals across the United States, the Foundation aims to help people living with scleroderma find their best path.

POSITION SUMMARY

The Director of Data Strategy & Community Operations leads the Foundation's data systems, operational processes, and technology platforms that support mission delivery, philanthropy, communications, and organizational decision-making. This role is responsible for leading the Foundation's data strategy, optimizing operational systems, implementing scalable technology solutions, and transforming organizational data into actionable insights that strengthen fundraising, engagement, and mission delivery. This role requires a collaborative, innovative, and relationship-driven leader who enjoys solving complex operational challenges, improving how work gets done, and using data to drive organizational strategy. Success depends on strong interpersonal skills, the ability to build productive partnerships across teams, and a talent for bringing people together around shared goals and organizational priorities. Rather than providing direct supervision of employees, the role leads through influence by managing cross-functional initiatives, driving strategic operational projects, and overseeing relationships with external vendors and contractors. It is ideal for someone who wants to move beyond traditional CRM administration to build scalable systems, shape organizational decision-making, and unlock the full value of data through creative, mission-driven solutions.

DUTIES & RESPONSIBILITIES

Data Strategy & CRM Lead Serve as the strategic owner and technical expert for the Foundation's CRM and constituent data ecosystem. Partner with leadership to identify key organizational metrics and develop reporting that measures progress toward strategic priorities. Oversee timely and accurate gift entry across the Foundation. Maintain data integrity, security, and quality across all constituent records. Identify emerging technologies, automation opportunities, and best practices that enhance fundraising, constituent engagement, and organizational effectiveness. Facilitate monthly and year-end CRM closing and reconciliation with Finance. Develop reporting dashboards and performance metrics that provide actionable insights for leadership, philanthropy, finance, communications, and chapters. Lead CRM governance, including database maintenance, reconciliation, imports, audits, documentation, and continuous improvement. Develop organization-wide CRM policies, procedures, and best practices. Champion a culture of data-informed decision-making by helping teams understand, access, and use data effectively. Systems & Process Improvement Evaluate organizational workflows and identify opportunities to improve efficiency through automation, technology, and process redesign. Lead cross-functional operational improvements by partnering with departments to identify challenges, design solutions, and implement sustainable change. Design and implement scalable operational processes across Community Engagement. Manage system implementations, vendor relationships, and technology projects. Ensure workflows remain documented, measurable, and sustainable. Training & Internal Support Develop and deliver training, documentation, and ongoing user support. Serve as the primary liaison between staff, vendors, and technology partners. Organizational Operations Support strategic initiatives across Community Engagement including Foundation operations, volunteer oversight and compliance, and other initiatives as assigned. Serve as a strategic partner to departments across the Foundation, collaborating with teams to use data to improve planning, decision-making, and organizational effectiveness. Provide strategic recommendations for leadership using organizational data, performance metrics, and operational insights. Identify opportunities to better align technology, data, and business processes with the Foundation's strategic priorities.

WORKING CONDITIONS

Location:

This role must be performed from an established state within the United States. 100%

Remote:

Work is performed in a home office environment. The employee is responsible for maintaining a safe, professional, and secure home workspace with reliable high-speed internet access.

Core Hours & Flexibility:

Regular business hours are required, with the flexibility to accommodate different U.S. time zones, evening committee meetings, and weekend events as necessary.

Travel Requirements:

Must be available and willing to travel up to 10% annually for national conferences, fundraising events, and staff retreats.

PHYSICAL REQUIREMENTS

The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

Sedentary Work:

Prolonged periods of sitting or standing at a desk and working on a computer (up to 8 hours per day).

Vision & Cognitive Function:

Clarity of vision at close range and the ability to view computer screens for extended periods. High cognitive capacity for complex problem-solving, budgeting, and strategic planning.

Communication:

Ability to frequently communicate, present, and exchange accurate information verbally and in writing with staff, board members, donors, and volunteers.

Mobility & Travel:

Expected 1x per year. Ability to navigate airports, train stations, and hotels independently. Capacity to lift, carry, and manage personal luggage and transport event materials (up to 40 lbs.) during travel. The National Scleroderma Foundation seeks to promote gender equality and increase diversity, in all its forms. We know that our greatest strengths come from the people who make up our team. We provide equal employment opportunities (EEO) to all employees and applicants for employment without regard to race, color, religion, gender, sexual orientation, national origin, age, disability, genetic information, marital status, amnesty, or status as a covered veteran in accordance with applicable federal, state, and local laws. The NSF complies with applicable state and local laws governing non-discrimination in employment in every location in which the company has facilities or conducts business. This is not a contract. The description and duties as they relate to this position are subject to change as reasonable business necessity dictates. In the event of such changes, a new job description may be created.

SKILLS AND ABILITIES

Required Strong project management and organizational skills. Experience with a project management tool such as Monday.com or Asana. Experience with reporting, data analysis, and data governance. Demonstrated success leading cross-functional process improvement, technology implementation, or organizational change initiatives. Excellent written and verbal communication. Ability to manage multiple priorities independently. Demonstrated ability to think strategically, solve complex operational challenges, and translate business needs into technology solutions. Preferred Experience with Omatic or similar integration tools. Experience with online fundraising platforms such as Funraisin. Experience supporting nonprofit fundraising operations.

QUALIFICATIONS

Required Bachelor's degree or equivalent experience. Five or more years of CRM/database management experience. 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